News

Jaxon’s fight to live with a disease no-one understands

JAXON McGourty suffers from Juvenile Dermatomyositis.
JAXON McGourty suffers from Juvenile Dermatomyositis. Renee Albrecht

But, as he can tell you, that is not always a good thing.

The Kandanga state school pupil went suddenly from athlete to invalid over Christmas and Boxing Day, 2014.

"He was uncontrollably active," his mother Emily Cavanagh told The Gympie Times," almost ADHD.

"He was just go, go, go in swimming and 16th in Queensland for eight-year-old boys in BMX."

Then, after a bad case of sunburn, he came out in a rash and suddenly did not move much at all.

"Within seven weeks he was in a wheelchair," Ms Cavanagh said.

 

But the innate strength that propelled him as an athlete is now the source of the courage which is helping him face the fight of his life, to beat a disease no one seems to understand.

"I'm not allowed in the sun for long and I can't do much and I'm not strong,'' Jaxon said. "It attacks my liver, kidneys and my muscles.

"My life was really hard last year, seeing all the other kids doing things that I can't do.

"It makes me really unhappy. I'm hoping they find a cure."

Jaxon's illness is called Juvenile Dermatomyositis - and in practical terms that seems to be almost all anyone knows about it.

"Breaking it down, 'derma' means skin, because it manifests itself as a head-to-toe rash and 'myositis' means it attacks the muscles," Ms Cavanagh said.

"Doctors came up with about four different diagnoses, all incorrect, before finding it was a disease affecting only about three kids a year. It affects the trunk muscles - abdominal wall, chest, neck, larynx and shoulders."

Auto-immune diseases are a frightening new plague and most people know a victim.

They include Type 1 diabetes, lupis, fibro myalgia and chronic fatigue.

"Jaxon's own body is trying to kill him and it's having a real good shot," Ms Cavanagh said.

"There is no cure and no known cause."

Ms Cavanagh is studying to be a nurse so she can understand the terminology of the disease, while her partner Morgan McGourty keeps the income flowing.

And there is Jaxon's brother Ollie, 5, to think of.

So how does Jaxon cope?

"The school is just awesome," Emily said. "The education department put in wheelchair access and a new wheelchair access toilet, a covered walkway to the play area and they're helping him catch up on school work with a special tutor."

Gympie Times

Topics:  disease editors picks health



Facebook bans ads for pregnancy services

Midwife Amanda Bude is having difficulty advertising on Facebook as they continue to ban photos of fully dressed pregnant women. Amanda is pictured working with Haley Hughes, who is 9 months pregnant, on a hypnotherapy birth.

Advertisements with baby-bump photos are being deemed too offensive

MY SAY: So you have a QTAC offer, eh?

UNIVERSITY: Plenty of people don't make it to graduation so it's a good idea to do your homework before starting a course.

Before you accept that QTAC university offer really look into things

Was Pauline Hanson really invited to Trump's party?

Pauline Hanson

One Nation senator Brian Burston will now attend the inauguration

Local Partners

Bushfire threat continues months longer than expected

UNSEASONALLY hot and dry weather has firefighters on alert as dangerous bushfire conditions extend nearly two months longer than usual.


The Amity Affliction's overdue homecoming

BACK IN TOWN: THe Amity Affliction play the Gympie Civic Centre on Friday night.

After 10 years away from Gympie, the local legends are back.

Puppetry of the Penis secrets revealed ahead of show

The famed Puppetry of the Penis is coming to the Sunshine Coast for shows in Noosa and Caloundra.

WARNING: This interview contains adult themes and traces of nuts

What's on in Gympie this weekend and next week for Australia Day?

Check out the Gig Guide for a couple of fun ideas for Australia Day, including a family friendly event at the Jockey Club Hotel.

All the action in Gympie for the Gig Guide this weekend.

Bowie's final music EP No Plan released

NEW: Artwork for David Bowie's posthumous 2016 EP, No Plan.

David Bowie's 28th and final album

The Amity Affliction's overdue homecoming

BACK IN TOWN: THe Amity Affliction play the Gympie Civic Centre on Friday night.

After 10 years away from Gympie, the local legends are back.

Married At First Sight: Ipswich bachelor seeks love

READY FOR IT: Ipswich man Simon McQuillan will appear on the upcoming new season of Married At First Sight.

Romance would top off recovery for Booval man

Dinky-di Denyer: Family Feud favourite hosts Oz Day party

Grant Denyer will host Channel 10's Australia Day concert from the Sydney Opera House.

GRANT Denyer shares his Australia Day traditions ahead of concert.

Chelsea Handler blames the Kardashians for Donald Trump win

Chelsea Handler pictured in a scene from her talk show in Los Angeles.

TALK show host blames rise of reality TV family for election result.

Law & Order’s Trump inspired episode is still in limbo

The cast of Law & Order: SVU season 18, from left, Kelli Giddish, Raul Esparza, Mariska Hargitay, Ice-T and Peter Scanavino. Supplied by Channel 10.

SHOW'S mastermind unsure if or when twice-delayed episode will air.

Ipswich block of dirt sells for $582 a square metre

JUST SOLD: A property on the Brookwater golf course sold for a record-breaking $612,000.

Property smashed 2007 record by close to $100,000

Sunday auction for historical home

Former Catholic school sure to attract spirited bidding

Looking back, looking ahead in Noosa

NEVER-ENDING GLORY: Looking towards Laguna Bay and Hastings St from Noosa National Park.

Natural appeal of Noosa continues to attract buyers

Thousands of jobs part of $1b retirement village project

THIS YEAR: An artist impression of the new Aveo retirement village in Springfield.

Aveo Springfield unveiled this month, homes ready by July

KNIFE-EDGE: The housing tightrope we now face

Even the smallest interest rate rise will be hard for some to handle.

One if five home owners at risk, according to new analysis

Ready to SELL your property?

Post Your Ad Here!